The Sensitives Documentary- A Review and Free Book Excerpt about Multiple Chemical Senstitivity

As someone who has MCS otherwise known as Multiple Chemical Sensitivity, I wanted to give my review of the movie “The Sensitives Documentary”. It is a sad, hopeless movie for me. These people are where I was in life two years ago. I have gotten much better, thank goodness due to my investigations and my training as a medical librarian. I will give in one sentence the things that have helped me most: increasing glutathione in my brain and body, taurine, occasional DHEA, and an external vagal nerve stimulator. I have become so insensitive to chemicals, luckily, that I have been able to kiss my beautiful Colombian ladyfriend on the neck where she has sprayed perfume, and I do not get sick. I can go to bathrooms that reek of fragrance and use them as they are meant to be used. I am much better. MCS is probably a constellation of problems, but for me it is definitely primarily a limbic system disorder. It probably is for many people. That being said although the things I espouse worked for me, they may not work for you. But I believe in helping my fellow travelers, so here you go.

I have been using the Auri-Stim 1000, which is a Vagal Nerve Stimulator that is not FDA approved, but it has been used in a bunch of clinical trials and is SAFE. I have been using it for two years. The two major problems with this device are one, the battery and logic sometimes goes off, so I have to buy another one, and they are $800. So, they are not cheap. But, I only have to use it once every week or so for 20 minutes, and the rest of the week is just great. According to my studies, the MCS affects the limbic system as epilepsy affects the brain, though a process called kindling, which just means that my limbic system is way too sensitive. A mix of Wellbutrin and Abilify gave my my MCS. The Sensitives Documentary reminded me that I want to spread the message that hope is there for people like me. I have shared my story on Medium a offshoot of Huffington Post before. But, I want to tell people also I am going for a stronger Vagal Nerve Stimulator that is approved by the FDA. It is called the GammaCore device. It’s FDA approved for cluster headaches. I have a feeling, it will help more than the weak Vagal Nerve Stimulator that I am currently using, and my neurologist has no problems with me getting it for an off-label use. So, I am just waiting to get the money and the paperwork done for that to happen. I will report in, after I get the GammaCore results. All the best. -William Jiang, MLS  The following is an excerpt from my intentionally low-cost book,  MCS Cure? The best Strategies of a Former Medical Library Chief and MCS Survivor. Somebody gave the book 1 star on Amazon not because the content was not potentially helpful, but because the contents of the book came from my blog. That was sad, as I only keep this book on the market to help people. The one star is discouraging, and many people who might benefit from it will not because of that.  Also, now that blog has crashed, I feel lucky these writings are still available anywhere. Anyways, here is the free excerpt, I hope if you have Multiple Chemical Sensitivity (MCS) and/or are inspired by The Sensitives Documentary to find treatments for MCS for yourself, a loved one that you find some healing in my words.  If you are a scientist working on Vagal Nerve Stimulation or you are working on Environmental Sensitivities or Multiple Chemical Sensitivities, I invite you to collaborate. All the best…

Free Excerpt

MCS Cure? The Medical Librarian’s Guide to Multiple Chemical Sensitivity

By William Jiang, MLS

Introduction

There are a lot of theories and scams out there about MCS, otherwise known as, Multiple Chemical Sensitivity, TILT or Toxicant Induced Lack of Tolerance in English, SQM or Sensibilidad Quimica Multiple in Spanish, and hypersensibilite chemie multiple in French. It is called other things in other languages, and I only know the above languages really well, so I will stick with those languages when I talk about MCS around the world. This book consists of articles I have written about MCS, culminating in an article that has given me my life back. I’m still chemically sensitive; however, now I can do things like go to Planet Fitness which is awash with chemicals all the time, I don’t fear travelling in New York City, I can take a cab that uses an air freshener and not feel sick. The list goes on, and I am so happy to share this information with you. I’m  not saying what works for me will definitely work for you, but it might.

So, who am I, and why should you take anything I say seriously? Well, I was a medical library Chief at Columbia Psychiatry for almost a decade, and I have written over thirty informative books that do not hype anything. I actually have a Masters of Library Science, so in a court of law, I would just on that fact, be eligible to give expert testimony. As a medical librarian I am very particular as to the information sources to which I lend credibility. There is so much misinformation on there on Google, and there is no way that anybody could sift all the gold from all the dross. So, I like to think my books are held to a higher standard.  All that being said, I will not be held liable to any use or misuse of the information presented in this book. Yes, all of the information is from quality resources; however, everybody reacts differently, in my experience to medical science. For example, antihistamines are amazingly efficacious and work as intended for most. Indeed that is why the United States Food and Drug Association classifies it as an OTC, or over the counter drug, it is deemed very safe by the FDA.. However, some people experience panic attacks when they take a benadryl, and so it goes. One never knows.

What is MCS?

Imagine you are seated comfortably among friends at a restaurant, until a waiter came up to your table to ostensibly make you all more at ease, and cleaned your table. You suddenly start choking due to the cleaner your server used, and you are forced to run out of the restaurant, ruining your fun evening. Worse still, this kind of situation happens more often than not. Maybe you have MCS.

Multiple chemical sensitivity (MCS) is a chronic medical condition and syndrome characterized by symptoms that the affected person attributes to low-level chemical exposures to commonly used chemicals, as presented in the above MCS Video. Commonly attributed substances include scented products, pesticides, plastics, synthetic fabrics, smoke, petroleum products, and paint fumes.

Apparently, MCS is partly a disorder of the limbic region of the brain, and can be treated by Low Dose Antigen therapy or nutraceuticals. In the future it may be treated with brain stimulation techniques other than ECT which only works a few days after it is given.

The Evidence

Australia, Germany (2000), Austria (2001), Japan (2009), Switzerland (2010), Denmark (2012), Spain and Canada (2014) all recognize Multiple Chemical Sensitivity as a medical condition.  As of December 2015, There are 336 articles pertaining to “mcs chemical sensitivity” on MEDLINE. It makes one wonder why the most powerful association of doctors in the world does not endorse MCS as a disorder. It would make things a whole lot easier for those with MCS in America, if the AMA would change their position, and it would surely save lives. Even the venerable Financial Times (UK) gives it more attention than the AMA. Let’s hope the AMA changes its tune before more Americans die unnecessarily.

MCS News as of June 21st, 2016

The Mainstream press in the English language is starting to cover Chemical Sensitivity. The following are a few articles on MCS in the news published so far in 2016, listed in reverse chronological order. MCS Video

MCS News as of June 21st, 2016

The Mainstream press in the English language is starting to cover Chemical Sensitivity. The following are a few articles on MCS in the news published so far in 2016, listed in reverse chronological order.

  • May 25th, 2016 Allergies keep Auckland woman living in isolation
  • May 23rd, 2016 Mediation fails to resolve case involving roadwork, ‘wrongful death’
  • May 3rd, 2016 University of Delaware Review Updated list of Green-care chemicals released
  • May 3rd, 2016 CBC New Glasgow woman with chemical sensitivities fights public housing eviction
  • April 15th, 2016 UK Daily Mail Recluse who does not use electricity because she’s ‘allergic to the modern world’ is now homeless after her wooden shack was burned down by a candle
  • March 21st, 2016 Inside Climate News The Air Around Aliso Canyon Is Declared Safe. So Why Are Families Still Suffering?
  • March 9th ABC 9 WVTM ‘I couldn’t stand it for 10 minutes’; carpet cleaner concerned with moldy apartment
  • February 6th, 2016 Doctor with MCS buys car, is allergic to it: Guy forked out £20k for a car… turns out he’s allergic to it
  • January 27th, 2016 Tri-City News: LIVING GREEN: How good is your smell?
  • January 25th, 2016 Apex- Scents and Sensitivity: Considering Passenger Allergies to Fragrance
  • January 22nd, 2016 Andover Advertiser, UK Who can help when fracking goes wrong?

 

Again, MCS is NOT a psychological disorder, it is a disorder of the limbic  (olfactory) system in the brain and other organ systems. MCS is being accepted by many first world countries as we collectively have more chemical exposure due to industrialization. Notice above, even the venerable Financial Times, UK has published an article about MCS.

In Spain and Latin America MCS is more accepted by the medical community as a legitimate physical medical disorder, and not as a psychological disorder.  Indeed, Spain is one of the most progressive governments in the world when it comes to helping people with Environmental Illnesses. In Spain people with MCS are protected by the law. See SQM (Sensiblidad Quimica Multiple) in the Spanish News.

 

Glutathione and MCS

For many whose glutathione may be out of whack due to medication, especially psychotropic medications, or environmental issues glutathione can be a big help in fighting the Chemical Sensitivity. Glutathione need not be inhaled to be helpful. Whey and NAC can also be of help. Whey is probably a good thing to add to any diet for health anyway. It used to be eaten much more; however, these days it seems to be a weightlifter “secret”.

Source: Altern Ther Health Med. 2008 May-Jun;14(3):42-4.

Title: Inhaled glutathione for the prevention of air pollution-related health effects a brief review.

Author: Allen J1.

Abstract:

Exposure to air pollution is associated with significant adverse health effects, such as cardiovascular disease and asthma. Most current research trends focus on quantifying illnesses or deaths attributable to air pollutants, but limited research has examined potential methods of preventing these effects. The mainstay of conventional therapies lies in the treatment of exposure-related diseases, not prevention strategies. Few medical interventions seek to protect the lungs directly. Complementary and alternative medicine (CAM) practitioners are widely recognized, and often criticized, for administering therapeutic substances based on biochemical plausibility or pre-clinical studies. One widely used CAM intervention that specifically targets the Slung is inhalation of the antioxidant glutathione. Inhaled glutathione is commonly used in the CAM community to treat a number of conditions, such as asthma, chronic obstructive pulmonary disease, bronchitis, sinusitis, and chemical sensitivity. Evidence suggests that inhaled glutathione rapidly increases pulmonary glutathione levels, providing a potential preventive intervention in the presence of environmental oxidants (eg, air pollutants). Enhancing pulmonary glutathione levels may reduce or eliminate systemic effects of air pollutants; however, no controlled studies have evaluated this potential. This article briefly reviews a major air pollutant (particulate matter) and the natural defense system against its toxicity and propose a pilot study to investigate the potential of inhaled glutathione to blunt its adverse effects.

 

The Sensitives Documentary- A Review

William Jiang, MLS is the Author of 63 books, including the bestselling books Guide to Natural Mental Health , 3rd ed and his critically-acclaimed autobiography A Schizophrenic Will: A Story of Madness, A Story of Hope. You can see a selection of his books about mental and physical health nicely laid out on his blog at http://www.mentalhealthbooks.net

This is the MCS Advocacy Letter I will be circulating for New York, Join me if you wish

Dear Sir or Madam:

My name is William Jiang, MLS and I am exquisitely chemically sensitive to the extent it almost took my life three years ago. Let me tell you a tale I’m lucky I am alive to tell. I was stricken with an illness that had no name while attending CUNY Baruch going for an MBA. I could not even take the trains or buses because they were “too clean”. How so? I had a battery of tests for my symptom of an illness that few mainstream medical practitioners would even consider exists. My symptom? I choked on any air that had even minute amounts of cleaning products or other man-made chemicals in it. Believe it or not, they clean the buses, trains, and subway. All tests came up negative. You can imagine that the mystery of my illness and my despair deepened.

Things went from bad to worse.  I was homeless on the streets of Manhattan in the cold autumn months of 2014 despite the help of my friends and loved ones. I went without sleep for six straight days because my landlord decided to do some welding of a heater in my bedroom, making it unlivable, and my backup, my parents home, was rendered temporarily unlivable due to industrial chemicals that were being used in a construction site nearby. I could not even go to a homeless shelter due to my exquisite sensitivity to cleaning products. I am lucky to be alive because after six days of no sleep some friends of mine had a place that was barely chemically-neutral enough to sleep for 17 hours straight. After three more sleepless days and nights after this needed, nourishing sleep, I was able to return to my parents home to the jubilation of my entire family. The construction site chemicals that nobody else even noticed had dissipated from our living space.  Let me tell you, I was so drained. I am a man of 6’2” and wide in the shoulder, yet I sank to my knees and cried when I realized survival, a lost dream, was a possibility. My point is that my issue, called by Environmental Medicine Practitioners in the United States, MCS or Multiple Chemical Sensitivity can be life threatening even with much  support.

I am not alone. There are thousands of people in the United States with MCS. As of today, no government agency on the local, state, nor federal level specifically supports the right to live of people with MCS with strong tangible action and help. This is the reason for this letter. I and the undersigned from New York petition you who have the power, for tangible help for this small, marginalized, and as of yet totally disenfranchised community. People with Multiple Chemical Sensitivities desperately need access and accessibility to special housing, transportation, and medical care. Thank you for your attention, and God bless.

 

Sincerely,

 

William Jiang, MLS and the undersigned

 

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If you wish to “sign” the letter please send me your name, post address,  and photo or scan of you signature to kd3qc@yahoo.com also check my FEDERAL Petition at https://petitions.whitehouse.gov/petition/help-chemically-sensitive-acquire-special-housing-medical-care-and-transportation-among-other-needs